Open Access Open Access  Restricted Access Subscription or Fee Access

Person-centered clinical practice guidelines

Amy Price


No abstract


Barriers, clinical practice guidelines (CPGs), evidence-based medicine, guideline development groups (GDGs), implementation, participatory action research, patient and public involvement, patient partnership strategies, patient values and preferences, per

Full Text:



Goldman, H.H. (2014). Shared decision making: roots in antiquity. Psychiatric Services 65 (12) 1399.

Hertwig, R., Hoffrage, U. & ABC Research Group. (2012). Simple Heuristics in a Social World. Oxford: Oxford University Press.

Elwyn, G., Edwards, A., Mowle, S., Wensing, M., Wilkinson, C., Kinnersley, P. & Grol, R. (2001). Measuring the involvement of patients in shared decision-making: a systematic review of instruments. Patient Education and Counseling 43 (1) 5-22.

Institute of Medicine. (1990). Clinical Practice Guidelines: Directions for a New Program. Washington, DC: National Academies Press.

Price, A., Albarqouni, L., Kirkpatrick, J., et al. (2017). Patient and Public Involvement in the Design of Clinical Trials: An Overview of Systematic Reviews. Journal of Evaluation in Clinical Practice Published Online First: 2017. doi:10.1111/jep.12805

Brett, J., Staniszewska, S., Mockford, C., Seers, K., Herron-Marx, S. & Bayliss, H. (2010). The PIRICOM Study : A systematic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research. Available at:

Nilsen, E.S., Myrhaug, H.T., Johansen, M., Oliver, S. & Oxman, A.D. (2006). Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane Database of Systematic Reviews. CD004563.

Chan, A., Song, F., Vickers, A., Jefferson, T., Dickersin, K., Gøtzsche, P.C., Krumholz, H.M., Gersi, D. & van der Worp, H. (2014). Increasing value and reducing waste: addressing inaccessible research. Lancet 383 (9913) 257-266.

Chalmers, I., Bracken, M.B., Djulbegovic, B., Garattini, S., Grant, J., Gülmezoqlu, A.M., Howells, D.W., Ioannidis, J.P. & Oliver, S. (2014). How to increase value and reduce waste when research priorities are set. Lancet 383 (9912) 156-165.

Price, A., Biswas, T. & Biswas, R. (2013). Person-centered healthcare in the information age: Experiences from a user driven healthcare network. European Journal for Person Centered Healthcare 1 (2) 385-393.

Vahdat, S., Hamzehgardeshi, L., Hessam, S. & Hamzehgardeshi, Z. (2014). Patient involvement in health care decision making: a review. Iranian Red Crescent Medical Journal 16 (1) e12454.

Mickan, S., Burls, A. & Glasziou, P. (2011). Patterns of ‘leakage’ in the utilisation of clinical guidelines: a systematic review. Postgraduate Medical Journal 87, 670-679.

Eady, E.A., Layton, A.M., Sprakel, J., Arentsd, B.W.M., Fedorowicz, Z. & van Zuuren, E.J. (2017). AGREE II assessments of recent acne treatment guidelines: how well do they reveal trustworthiness as defined by the Institute of Medicine (IOM) criteria? British Journal of Dermatology Published Online First: 1 July 2017. doi:10.1111/bjd.15777.

Elwyn, G., Wieringa, S. & Greenhalgh, T. (2016). Clinical encounters in the post-guidelines era. BMJ (Clinical Research Edition) 353, i3200.

Joseph-Williams, N., Elwyn, G. & Edwards, A. (2014). Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling 94, 291-309.

Snow, R., Crocker, J.C. & Crowe, S. (2015). Missed opportunities for impact in patient and carer involvement: a mixed methods case study of research priority setting. Research Involvement and Engagement 1, 7.

Miles, A. (2009). On a Medicine of the Whole Person: Away from scientistic reductionism and towards the embrace of the complex in clinical practice. Journal of Evaluation in Clinical Practice 15, 941-949.

Miles, A. & Asbridge, J.E. (2017). Person-Centered Healthcare - moving from rhetoric to methods, through implementation to outcomes. European Journal for Person Centered Healthcare 5 (1) 1-9.

Anderson, M. & McCleary, K.K. (2015). From passengers to co-pilots: Patient roles expand. Science Translational Medicine (291) fs25.

Scholl, I., Zill, J.M., Härter, M. & Dirmaier, J. (2014). An Integrative Model of Patient-Centeredness - A Systematic Review and Concept Analysis. PLoS One 9 (9) e107828.

Arora, N., Tamrakar, N., Price, A. & Biswas, R. (2014). Medical Students Meet User Driven Health Care for Patient Centered Learning in Clinical Medicine. International Journal of User-Driven Healthcare 4 (3) 7-17.

Purkayastha, S., Price, A., Biswas, R., Jai Ganesh, A.U. & Otero, P. (2015). From Dyadic Ties to Information Infrastructures: Care-Coordination between Patients, Providers, Students and Researchers. Yearbook of Medical Informatics 10 (1) 68-74.

Stokes, G., Richardson, M., Brunton, G., Khatwa, M. & Thomas, J. (2015). Review 3 : Community engagement for health via coalitions , collaborations and partnerships (on-line social media and social networks). A systematic review and meta-analysis. London UK: Research Unit, UCL Institute of Education, University College London.

Brett, J., Staniszewska, S., Mockford, C., Herron-Marx, S., Hughes, J., Tysall, C. & Suleman, R. (2014). Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations 17 (5) 637-650.

Martin, C.M. & Sturmberg, J.P. (2013). Making Sense: From Complex Systems Theories, Models, and Analytics to Adapting Actions and Practices in Health and Health Care. In: Handbook of Systems and Complexity in Health, Sturmberg, J.P. & Martin, C.M. Eds. pp. 797-813. New York: Springer.

Domecq, J.P., Prutsky, G., Elraiyah, T., Wang, Z., Nabhan, M., Shippee, N., Brito, J.P., Boehmer, K., Hasan, R., Firwana, B., Erwin, P., Eton, D., Sloan, J., Montori, V., Asi, N., Dabrh, A.M. & Murad, M.H. (2014). Patient engagement in research: a systematic review. BMC Health Services Research 14, 89.

Chatterjee, S., Price, A. & Biswas, R. (2014). Turning the tables on learning attrition in medical students: Introducing User Driven Healthcare. Indian Journal of Medical Informatics 8 (2) 6-11.

Braithwaite, J. (2015). Bridging gaps to promote networked care between teams and groups in health delivery systems: a systematic review of non-health literature. BMJ Open 5, e006567.

Price, A., Liew, S.M., Kirkpatrick, J., Price, J., Lopreto, T. & Nelken, Y. (2017). Mind the gap in clinical trials: A participatory action analysis with citizen collaborators. Journal of Evaluation in Clinical Practice 23 (1) 178-184.

Ünlü Ince, B., Cuijpers, P., van’t Hof, E., van Ballwgooijen, W., Christensen, H. & Riper, H. (2013). Internet-Based, Culturally Sensitive, Problem-Solving Therapy for Turkish Migrants With Depression: Randomized Controlled Trial. Journal of Medical Internet Research 15 (10) e227.

Dynamed Plus, Option Grids. Lumbar spinal stenosis treatment - Option Grid. (2017). DynaMed Plus [Internet]. Ipswich (MA): EBSCO Information Services. Record No. 919925. Available at: (accessed 25 Aug 2017).

Wiki Recs, Rapid Recs, MAGIC. (2016). WikiRecs* and BMJ RapidRecs | Trustworthy recommendations. The BMJ. 2016. Available at: (accessed 25 Aug2017).

Fretheim, A., Schunemann, H.J. & Oxman, A.D. (2006). Improving the use of research evidence in guideline development: 3. Group composition and consultation process. Health Research Policy and Systems 4, 15.

Guidelines International Network. (2015). G-I-N PUBLIC Toolkit: Patient and Public Involvement in Guidelines.

National Institute for Health and Care Excellence. Methods for the development of NICE public health guidence (third edition). 2012.

Abelson, J. (2015). Patient Engagement and Canada’s SPOR Initiative.

Sheridan, S., Schrandt, S., Forsythe, L., Hillard, T.S., Paez, K.A. & Advisory Panel on Patient Engagement (2013 inaugural panel). (2017). The PCORI Engagement Rubric: Promising Practices for Partnering in Research. Annals of Family Medicine 15 (2) 165-170.

NIHR, NETSCC. (2017). Clinical Trials Toolkit Trial Planning and Design. NIHR. Available at: (accessed 18 Mar 2017).

Turner, K. (2012). Briefing notes for researchers : public involvement in NHS, public health and social care research. Available at:

Gargon, E., Williamson, P.R., Altman, D.G., Blazeby, J.M., Tunis, S. & Clarke, M. (2017). The COMET Initiative database: progress and activities update (2015). Trials 18 (1) 54.

Brouwers, M.C., Kerkvliet, K., Spithoff, K. & AGREE Next Steps Consortium. (2016). The AGREE Reporting Checklist: a tool to improve reporting of clinical practice guidelines. British Medical Journal 352, i1152.

Staniszewska, S., Brett, J., Simera, I., et al. (2017). GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. British Medical Journal 358, j3453.

Alper, B.S., Elwyn, G. & Price, A. (2017). Prioritizing Shared Decision Making. Journal of the American Medical Association 317 (8) 856-857.



  • There are currently no refbacks.